“We need to talk”: Social and ethical dialogue around genomics and disability

This Earmarked Scholarship project is aligned with a recently awarded Category 1 research grant. It offers you the opportunity to work with leading researchers and contribute to large projects of national significance.

Supervisor – Professor Karen Nankervisk.nankervis@uq.edu.au

“We need to talk”: Social and ethical dialogue around genomics and disability is a major Medical Research Futures Fund (MRFF) project grant in relation to the ethical, legal, and social issues related to genomics in health care. This MRFF funded project aims to a) articulate the ethical, social and legal issues of genomics for people with disabilities and their families; and, b) implement a collaborative, co-design model to inform the design and conduct of human genetic research as well as genomics policy, research, education and practices.

This research project will provide a voice for people with disabilities and their families with a key focus on the impact of genomics on the identity of people with disabilities and their presence in society. An understanding of the impact of genomics on the lives of people with disabilities is similarly beneficial for scientists, clinicians and policy makers who will be included in this project.  A shared understanding and dialogue to bring together these critical perspectives of the ethical, social and legal aspects of genomics is a critical activity of this project.

Preferred educational background

Applications will be judged on a competitive basis taking into account the applicant's previous academic record, publication record, honours and awards, and employment history.

A working knowledge of working collaboratively across disciplines and stakeholders, working with people with disabilities, and translation of research into practice would be of benefit to someone working on this project.

The applicant will demonstrate academic achievement in the field(s) of social sciences, specifically in relation to disability, and the potential for scholastic success.

A background or knowledge of lived experience of disability is highly desirable.

*The successful candidate must commence by Research Quarter 3, 2021. You should apply at least 3 months prior to the research quarter commencement date. International applicants may need to apply much earlier for visa reasons.

Apply now